BioGrid Australia Ltd

BioGrid is a not-for-profit organisation enabling researchers and industry to ethically capture, link and analyse privacy-protected data more cost effectively, more efficiently, than has ever been possible before. BioGrid was established by health clinicians to develop a real-time data linkage platform that is federated and works across multiple health organisations, jurisdictions and disease settings. Privacy and security of the databases and intellectual property of the data owners is ethically protected. The BioGrid IT platform federates the databases (which are stored, maintained and controlled by the host/member site), creating a virtual repository which can be linked with other databases such as publicly available research and genetic profiling data. The federated BioGrid system enables authorised users to securely access records of thousands of patients (where data is record-linked across multiple databases, organisations and sites), whilst protecting both privacy and intellectual property rights. By providing access to the data sets, to data on clinical outcomes, administrative data, quality and audit data, biospecimen genomic data, images as well as analytical tools, this platform positions Australia with the capacity to maximise life sciences research. Data is collected only once. As a result, time that was previously spent on data collection is now dedicated to improving research outcomes.