EB Research Partnership (Australia)

Epidermolysis Bullosa is a life threatening genetic disorder that affects the body's largest organ: the skin. Children born with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and often wounds that never heal. Our Mission is to raise funds to invest in science & medical research that will lead to products and therapies for treating and ultimately curing Epidermolysis Bullosa. Our Social media guidelines are: https://ebresearch.org.au/social-media-guidelines/